Below are some questions I’ve been asked or expect to be asked about myself, Met Moxie or chronic illness. Please give them a read before contacting me with your question because it may have already been answered 😊.
As mentioned on my about page, I have been around on the internet since the late 90s, so yes, it’s entirely possible that I am the Darnielle/Nellie you remember from blogs past. Some of my more popular blogs included Harlequimsy, Harlequin Girl, Spectacjuular, Nelliebolical, Choleric, She Fades Away, Piratepunk and Ev3nstar.
Moxie is a word and concept I’ve long been a fan of. It means a determined and fighting spirit. When you “keep on keeping on” despite setbacks. And met is the Dutch word for “with”. So basically, everything I do, I do “met moxie”!
I made it myself but because I hard-coded functions and features custom to me, I don’t offer it as a downloadable pre-made theme for others to use. However, if you’re interested in getting something similar for your own blog, I do offer my services as a (Divi) designer.
Namecheap. I know there’s some kind of ~rule~ that you shouldn’t let your domain registrar also host your website, but Namecheap’s hosting packages are suited to my needs, reliable, and it’s great to be able to manage everything related to my domains in one control panel.
Either my phone (a Xiaomi Pocophone F1) or very rarely, my Panasonic Lumix DMC-TZ57 digital camera. Nothing fancy.
Short answer: No. I only link to content I enjoy. Long answer: Maybe! Because I do enjoy A LOT of content and making friends with content creators, so if you want to see yourself on my links page, interact with me and you very well may end up on it!
It depends on the problem. I am not a registered psychologist so I can’t help with the diagnosis or treatment of anything, but I can definitely offer advice and/or point you in the direction of someone who can help. I can also totally help with psychology as a subject. If you’re unsure, please don’t be scared to ask. I will do my best to help!
I know this is pretentious as hell, but this is, unfortunately, an issue I deal with a lot. My opinions don’t closely align with any single ideology so I tend to say stuff that doesn’t match up with other things I’ve previously said. But PLEASE, talk to me about it! I am constantly learning and growing, and I’m open to the idea that I may be wrong about something. I hate being misunderstood so I would also love the chance to explain myself a little better.
Chronic Illness FAQ
Very basically, a spoonie is a chronically ill person whose illness(es) cause limited energy. It comes from Christine Miserandino’s Spoon Theory, which is a metaphor for the availability and allocation of energy (spoons) to complete every day tasks. Some chronically ill people do not like this term because it somewhat minimises what we go through, but I like it’s simplicity and ability to convey my status as a chronically ill person to fellow ‘spoonies’ and people who are in the know.
When people think of a disabled person, they likely see someone who is faced with the same level of disability every day with needs to match. A dynamic disability is one where the level of disability is variable and can change from day to day (or even hour to hour!). This means someone who is dynamically disabled can appear to be totally unimpeded by their disability one day, and completely incapacitated by it the next. This term was coined by Brianne Benness, who explains it beautifully in this article.
I know this is a contentious subject in the disability/chronic illness community and I really don’t mean to offend anyone with my answer, but here goes!
Researching and advocating for health issues you believe might be causing your symptoms is something I support wholeheartedly, but deciding you have something when a doctor won’t diagnose you with it is something I cannot support. I understand the frustration with doctors who have no idea what’s wrong with you, but self-diagnosis does nothing but give you a label for what you MIGHT be dealing with. You cannot get proper treatment for anything that’s not formally diagnosed, and you may end up making your problems worse (or miss other problems your doctor can help with completely!) by self-medicating.
If it is easily accessible and affordable, most likely. I have been ill for around 15 years now, so unless it’s something groundbreakingly new, I have likely tried it. So, please, please, PLEASE do not waste your time telling me about it. If I’m specifically looking for treatment help, I will ask for it! Also, keep in mind that treatment is not universal for chronic illnesses so things that may have worked for you or other people you know won’t necessarily work for others.
I write more about this on the blog, but basically, I am a realist. I’m not an advocate of positive thinking, practising gratitude or anything like that. I see my illnesses as something I simply have to “deal with”. I enjoy myself when I can, and I allow myself to feel whatever I feel when things aren’t going so well. Sometimes this means being sad or mad for weeks on end, but I am comfortable in my emotions.
The answer to that is a solid maybe. I don’t think I will never get back to how I was before I fell ill, but I do think I will eventually become functional enough to contribute to society a bit more than I currently do. And who knows, they might find a treatment that works or even a cure for all of my illnesses before my time is up, especially now that Long COVID is a thing! That’d be pretty cool!